Self-perception of stigma among epilepsy patients in Malaysia

Introduction: Epilepsy remains a stigmatised disease across geographical and temporal boundaries. Very little is known about epileptic stigma (ES) in cross-cultural settings. The aim of this study was to assess the prevalence of perceived stigma and factors associated with it, among patients with...

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Main Authors:	Rathor, Mohammad Yousuf, Shahar, Mohammad Arif, Omar, Ahmad Marzuki, Mohd Shah, Azarisman Shah, Draman, Che Rosle, Tin, Maw
Format:	Article
Language:	English English English
Published:	Kulliyyah of Medicine, International Islamic University Malaysia 2018
Subjects:	RA643 Public Health. Hygiene. Preventive Medicine - Communicable Diseases and Public Health
Online Access:	http://irep.iium.edu.my/48293/ http://irep.iium.edu.my/48293/ http://irep.iium.edu.my/48293/19/48293%20Self-perception%20of%20Stigma.pdf http://irep.iium.edu.my/48293/2/48293_Self-perception%20of%20stigma_SCOPUS.pdf http://irep.iium.edu.my/48293/3/48293_Self-perception%20of%20stigma_WOS.pdf

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spelling	iium-482932018-07-30T08:19:55Z http://irep.iium.edu.my/48293/ Self-perception of stigma among epilepsy patients in Malaysia Rathor, Mohammad Yousuf Shahar, Mohammad Arif Omar, Ahmad Marzuki Mohd Shah, Azarisman Shah Draman, Che Rosle Tin, Maw RA643 Public Health. Hygiene. Preventive Medicine - Communicable Diseases and Public Health Introduction: Epilepsy remains a stigmatised disease across geographical and temporal boundaries. Very little is known about epileptic stigma (ES) in cross-cultural settings. The aim of this study was to assess the prevalence of perceived stigma and factors associated with it, among patients with epilepsy (PWE) at a tertiary care referral hospital in East Coast of Malaysia. Methods: A cross sectional survey among 132 consenting PWE using pre-tested, semi-structured questionnaire in Malay/English language to assess their knowledge, attitude and practices (KAPs). Results: Among 132 respondents, 51.5% were male and 48.5 % were female. Their age ranged from 14 to 70 years (mean=31.6±13.41). Majority (53.8%) of them were aged 30 years or younger. The median number of years they had epilepsy was 8.0 (IQR 4.0-18.8) years and average duration of seizure prior to seeking medical attention was 1.0 (IQR 0.3 - 4.5) year. Most of them (90.9%) did not know the cause of epilepsy; however nearly all (91.7%) believed that it was a disease of the brain. Higher education level respondents possessed significantly higher KAP scores compared to lower education level respondents (p<0.001). Respondents with good KAP scores believed that epilepsy was not contagious and they observed greater social tolerance. Conclusion: Our study suggests that there is an inverse relationship between knowledge and ES. Self-perceived stigma was more common among our PWE. The results suggest that there is a critical need to enhance epilepsy education amongst the PWE beyond mere seizure control. Kulliyyah of Medicine, International Islamic University Malaysia 2018-04-01 Article PeerReviewed application/pdf en http://irep.iium.edu.my/48293/19/48293%20Self-perception%20of%20Stigma.pdf application/pdf en http://irep.iium.edu.my/48293/2/48293_Self-perception%20of%20stigma_SCOPUS.pdf application/pdf en http://irep.iium.edu.my/48293/3/48293_Self-perception%20of%20stigma_WOS.pdf Rathor, Mohammad Yousuf and Shahar, Mohammad Arif and Omar, Ahmad Marzuki and Mohd Shah, Azarisman Shah and Draman, Che Rosle and Tin, Maw (2018) Self-perception of stigma among epilepsy patients in Malaysia. International Medical Journal Malaysia, 17 (1). pp. 113-120. ISSN 1823-4631 http://iiumedic.net/imjm/v1/download/volume_17_no_1/Vol17-No1-p113120.pdf
repository_type	Digital Repository
institution_category	Local University
institution	International Islamic University Malaysia
building	IIUM Repository
collection	Online Access
language	English English English
topic	RA643 Public Health. Hygiene. Preventive Medicine - Communicable Diseases and Public Health
spellingShingle	RA643 Public Health. Hygiene. Preventive Medicine - Communicable Diseases and Public Health Rathor, Mohammad Yousuf Shahar, Mohammad Arif Omar, Ahmad Marzuki Mohd Shah, Azarisman Shah Draman, Che Rosle Tin, Maw Self-perception of stigma among epilepsy patients in Malaysia
description	Introduction: Epilepsy remains a stigmatised disease across geographical and temporal boundaries. Very little is known about epileptic stigma (ES) in cross-cultural settings. The aim of this study was to assess the prevalence of perceived stigma and factors associated with it, among patients with epilepsy (PWE) at a tertiary care referral hospital in East Coast of Malaysia. Methods: A cross sectional survey among 132 consenting PWE using pre-tested, semi-structured questionnaire in Malay/English language to assess their knowledge, attitude and practices (KAPs). Results: Among 132 respondents, 51.5% were male and 48.5 % were female. Their age ranged from 14 to 70 years (mean=31.6±13.41). Majority (53.8%) of them were aged 30 years or younger. The median number of years they had epilepsy was 8.0 (IQR 4.0-18.8) years and average duration of seizure prior to seeking medical attention was 1.0 (IQR 0.3 - 4.5) year. Most of them (90.9%) did not know the cause of epilepsy; however nearly all (91.7%) believed that it was a disease of the brain. Higher education level respondents possessed significantly higher KAP scores compared to lower education level respondents (p<0.001). Respondents with good KAP scores believed that epilepsy was not contagious and they observed greater social tolerance. Conclusion: Our study suggests that there is an inverse relationship between knowledge and ES. Self-perceived stigma was more common among our PWE. The results suggest that there is a critical need to enhance epilepsy education amongst the PWE beyond mere seizure control.
format	Article
author	Rathor, Mohammad Yousuf Shahar, Mohammad Arif Omar, Ahmad Marzuki Mohd Shah, Azarisman Shah Draman, Che Rosle Tin, Maw
author_facet	Rathor, Mohammad Yousuf Shahar, Mohammad Arif Omar, Ahmad Marzuki Mohd Shah, Azarisman Shah Draman, Che Rosle Tin, Maw
author_sort	Rathor, Mohammad Yousuf
title	Self-perception of stigma among epilepsy patients in Malaysia
title_short	Self-perception of stigma among epilepsy patients in Malaysia
title_full	Self-perception of stigma among epilepsy patients in Malaysia
title_fullStr	Self-perception of stigma among epilepsy patients in Malaysia
title_full_unstemmed	Self-perception of stigma among epilepsy patients in Malaysia
title_sort	self-perception of stigma among epilepsy patients in malaysia
publisher	Kulliyyah of Medicine, International Islamic University Malaysia
publishDate	2018
url	http://irep.iium.edu.my/48293/ http://irep.iium.edu.my/48293/ http://irep.iium.edu.my/48293/19/48293%20Self-perception%20of%20Stigma.pdf http://irep.iium.edu.my/48293/2/48293_Self-perception%20of%20stigma_SCOPUS.pdf http://irep.iium.edu.my/48293/3/48293_Self-perception%20of%20stigma_WOS.pdf
first_indexed	2023-09-18T21:08:32Z
last_indexed	2023-09-18T21:08:32Z
_version_	1777411096445976576

Self-perception of stigma among epilepsy patients in Malaysia

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