Thalassaemia: A study on the perception of patients and family members

Marked improvement in the management of thalassaemia has not been matched by progress in psychosocial rehabilitation as thalassaemia continues to pose challenges to patients and their family members. Few studies have been carried out in Malaysia to look at such issues. This study is therefore to e...

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Main Authors:	Jantan, Abdul Wahab, Muhammad, Naznin, Mat Zin, Nora, Abdul Rahman, Suzanah, Mohamed, Zulaiha, Abdul Rahim, Aidil Faszrul, Wan Su, Kamaruzaman
Format:	Article
Language:	English English
Published:	Malaysian Medical Association 2011
Subjects:	R Medicine (General)
Online Access:	http://irep.iium.edu.my/55779/ http://irep.iium.edu.my/55779/ http://irep.iium.edu.my/55779/1/Thalassaemia.pdf http://irep.iium.edu.my/55779/7/Scopus%20-%20Document%20details.pdf

id	iium-55779
recordtype	eprints
spelling	iium-557792019-01-11T03:31:39Z http://irep.iium.edu.my/55779/ Thalassaemia: A study on the perception of patients and family members Jantan, Abdul Wahab Muhammad, Naznin Mat Zin, Nora Abdul Rahman, Suzanah Mohamed, Zulaiha Abdul Rahim, Aidil Faszrul Wan Su, Kamaruzaman R Medicine (General) Marked improvement in the management of thalassaemia has not been matched by progress in psychosocial rehabilitation as thalassaemia continues to pose challenges to patients and their family members. Few studies have been carried out in Malaysia to look at such issues. This study is therefore to explore the concerns, beliefs and feelings about thalassaemia. It was conducted in the year 2009 over 7 months on “focus groups”, in patients aged 8-22 years and parents attending Paediatric Clinic of Tengku Ampuan Afzan Hospital, Kuantan, Pahang. Results showed that concerns and adverse impact were related to lower grades in education, poor self-image, less chance of employment, marriage, financial burden and social integration. Compliance to subcutaneous iron chelator was poor. There were various concerns related to blood transfusion therapy. It is evident that thalassaemia greatly affects the psychosocial dimensions and a more structured long term psychosocial support is needed to improve quality of life of patients. Malaysian Medical Association 2011-10 Article PeerReviewed application/pdf en http://irep.iium.edu.my/55779/1/Thalassaemia.pdf application/pdf en http://irep.iium.edu.my/55779/7/Scopus%20-%20Document%20details.pdf Jantan, Abdul Wahab and Muhammad, Naznin and Mat Zin, Nora and Abdul Rahman, Suzanah and Mohamed, Zulaiha and Abdul Rahim, Aidil Faszrul and Wan Su, Kamaruzaman (2011) Thalassaemia: A study on the perception of patients and family members. Medical Journal of Malaysia, 66 (4). pp. 326-334. ISSN 0300-5283 http://www.e-mjm.org/2011/v66n4/index.html
repository_type	Digital Repository
institution_category	Local University
institution	International Islamic University Malaysia
building	IIUM Repository
collection	Online Access
language	English English
topic	R Medicine (General)
spellingShingle	R Medicine (General) Jantan, Abdul Wahab Muhammad, Naznin Mat Zin, Nora Abdul Rahman, Suzanah Mohamed, Zulaiha Abdul Rahim, Aidil Faszrul Wan Su, Kamaruzaman Thalassaemia: A study on the perception of patients and family members
description	Marked improvement in the management of thalassaemia has not been matched by progress in psychosocial rehabilitation as thalassaemia continues to pose challenges to patients and their family members. Few studies have been carried out in Malaysia to look at such issues. This study is therefore to explore the concerns, beliefs and feelings about thalassaemia. It was conducted in the year 2009 over 7 months on “focus groups”, in patients aged 8-22 years and parents attending Paediatric Clinic of Tengku Ampuan Afzan Hospital, Kuantan, Pahang. Results showed that concerns and adverse impact were related to lower grades in education, poor self-image, less chance of employment, marriage, financial burden and social integration. Compliance to subcutaneous iron chelator was poor. There were various concerns related to blood transfusion therapy. It is evident that thalassaemia greatly affects the psychosocial dimensions and a more structured long term psychosocial support is needed to improve quality of life of patients.
format	Article
author	Jantan, Abdul Wahab Muhammad, Naznin Mat Zin, Nora Abdul Rahman, Suzanah Mohamed, Zulaiha Abdul Rahim, Aidil Faszrul Wan Su, Kamaruzaman
author_facet	Jantan, Abdul Wahab Muhammad, Naznin Mat Zin, Nora Abdul Rahman, Suzanah Mohamed, Zulaiha Abdul Rahim, Aidil Faszrul Wan Su, Kamaruzaman
author_sort	Jantan, Abdul Wahab
title	Thalassaemia: A study on the perception of patients and family members
title_short	Thalassaemia: A study on the perception of patients and family members
title_full	Thalassaemia: A study on the perception of patients and family members
title_fullStr	Thalassaemia: A study on the perception of patients and family members
title_full_unstemmed	Thalassaemia: A study on the perception of patients and family members
title_sort	thalassaemia: a study on the perception of patients and family members
publisher	Malaysian Medical Association
publishDate	2011
url	http://irep.iium.edu.my/55779/ http://irep.iium.edu.my/55779/ http://irep.iium.edu.my/55779/1/Thalassaemia.pdf http://irep.iium.edu.my/55779/7/Scopus%20-%20Document%20details.pdf
first_indexed	2023-09-18T21:18:45Z
last_indexed	2023-09-18T21:18:45Z
_version_	1777411738963017728

Thalassaemia: A study on the perception of patients and family members

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