Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia

Palliative care is associated with life-threatening diseases and death. To deepen understanding of the complexity of information need, information seeking behaviour becomes important in order to enhance the provision of adequate information and quality of services on the part of patients and carers...

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Main Authors: Mohamadali, Noor Azizah, Cy Oun, Cindy Teoh, Ahmad, Maznah, Mohammed, Siti Asma
Format: Conference or Workshop Item
Language:English
English
Published: 2017
Subjects:
Online Access:http://irep.iium.edu.my/60741/
http://irep.iium.edu.my/60741/
http://irep.iium.edu.my/60741/1/ICIMU-noor-%231570396580.pdf
http://irep.iium.edu.my/60741/7/60741_abstract.pdf
id iium-60741
recordtype eprints
spelling iium-607412018-01-16T01:39:23Z http://irep.iium.edu.my/60741/ Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia Mohamadali, Noor Azizah Cy Oun, Cindy Teoh Ahmad, Maznah Mohammed, Siti Asma R Medicine (General) Palliative care is associated with life-threatening diseases and death. To deepen understanding of the complexity of information need, information seeking behaviour becomes important in order to enhance the provision of adequate information and quality of services on the part of patients and carers in palliative care. This paper aims to investigate how patients and carers seek and use the information they need regarding palliative care. The study mainly assessed careers purpose of seeking information, preferable sources of health information and format, language and method of communication. The study used quantitative method with the aid of structured questionnaires distributed among 45 respondents. The study found that the main purpose to seek information is to find out details of the illness they were diagnosed by the doctor (66%). Many also indicated searching for the possible location of care within their area of living as another purpose (59%). The preferences source of seeking information is by consulting with the doctors, followed by talking to family members, friends and consulting with allied health workers. In terms of seeking format of information related to their illness, most respondents preferred printed material (42%) as opposed to electronic (36%) or audiovisual materials (24%). They also mostly preferred information in the Malay language (85%) including of those Chinese respondents. The least preferred source of information is personal health blogs and apps. Respondents preferred a face-to-face meeting with the doctors (55%) as a method of communication. The paper then provides useful suggestions that would facilitate information seeking and use of the information they need among patients and careers in Malaysia and other countries with similar conditions. 2017-11-08 Conference or Workshop Item NonPeerReviewed application/pdf en http://irep.iium.edu.my/60741/1/ICIMU-noor-%231570396580.pdf application/pdf en http://irep.iium.edu.my/60741/7/60741_abstract.pdf Mohamadali, Noor Azizah and Cy Oun, Cindy Teoh and Ahmad, Maznah and Mohammed, Siti Asma (2017) Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia. In: 7th International Conference on Information Technology and Multimedia (ICIMU 2017), 7th-9th November 2017, Hotel Bangi-Putrajaya. (Unpublished) http://icimu.uniten.edu.my/
repository_type Digital Repository
institution_category Local University
institution International Islamic University Malaysia
building IIUM Repository
collection Online Access
language English
English
topic R Medicine (General)
spellingShingle R Medicine (General)
Mohamadali, Noor Azizah
Cy Oun, Cindy Teoh
Ahmad, Maznah
Mohammed, Siti Asma
Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
description Palliative care is associated with life-threatening diseases and death. To deepen understanding of the complexity of information need, information seeking behaviour becomes important in order to enhance the provision of adequate information and quality of services on the part of patients and carers in palliative care. This paper aims to investigate how patients and carers seek and use the information they need regarding palliative care. The study mainly assessed careers purpose of seeking information, preferable sources of health information and format, language and method of communication. The study used quantitative method with the aid of structured questionnaires distributed among 45 respondents. The study found that the main purpose to seek information is to find out details of the illness they were diagnosed by the doctor (66%). Many also indicated searching for the possible location of care within their area of living as another purpose (59%). The preferences source of seeking information is by consulting with the doctors, followed by talking to family members, friends and consulting with allied health workers. In terms of seeking format of information related to their illness, most respondents preferred printed material (42%) as opposed to electronic (36%) or audiovisual materials (24%). They also mostly preferred information in the Malay language (85%) including of those Chinese respondents. The least preferred source of information is personal health blogs and apps. Respondents preferred a face-to-face meeting with the doctors (55%) as a method of communication. The paper then provides useful suggestions that would facilitate information seeking and use of the information they need among patients and careers in Malaysia and other countries with similar conditions.
format Conference or Workshop Item
author Mohamadali, Noor Azizah
Cy Oun, Cindy Teoh
Ahmad, Maznah
Mohammed, Siti Asma
author_facet Mohamadali, Noor Azizah
Cy Oun, Cindy Teoh
Ahmad, Maznah
Mohammed, Siti Asma
author_sort Mohamadali, Noor Azizah
title Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_short Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_full Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_fullStr Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_full_unstemmed Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_sort information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital malaysia
publishDate 2017
url http://irep.iium.edu.my/60741/
http://irep.iium.edu.my/60741/
http://irep.iium.edu.my/60741/1/ICIMU-noor-%231570396580.pdf
http://irep.iium.edu.my/60741/7/60741_abstract.pdf
first_indexed 2023-09-18T21:26:06Z
last_indexed 2023-09-18T21:26:06Z
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