Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia

Palliative care is associated with life-threatening diseases and death. To deepen understanding of the complexity of information need, information seeking behaviour becomes important in order to enhance the provision of adequate information and quality of services on the part of patients and c...

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Main Authors:	Mohamadali, Noor Azizah, Teoh Cy Oun, Cindy, Ahmad, Maznah, Mohammed, Siti Asma
Format:	Article
Language:	English
Published:	2018
Subjects:	Q Science (General) RA Public aspects of medicine
Online Access:	http://irep.iium.edu.my/64204/ http://irep.iium.edu.my/64204/ http://irep.iium.edu.my/64204/ http://irep.iium.edu.my/64204/1/64204_Information%20Needs%20and%20Seeking%20Behavior.pdf

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recordtype	eprints
spelling	iium-642042018-06-28T03:49:14Z http://irep.iium.edu.my/64204/ Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia Mohamadali, Noor Azizah Teoh Cy Oun, Cindy Ahmad, Maznah Mohammed, Siti Asma Q Science (General) RA Public aspects of medicine Palliative care is associated with life-threatening diseases and death. To deepen understanding of the complexity of information need, information seeking behaviour becomes important in order to enhance the provision of adequate information and quality of services on the part of patients and carers in palliative care. This paper aims to investigate how patients and carer are seeking and use the information they need regarding palliative care. The study mainly assessed careers purpose of seeking information, preferable sources of health information and format, language and method of communication. The study used a quantitative method with the aid of structured questionnaires distributed among 45 respondents. The study found that the main purpose to seek information is to find out details of the illness they were diagnosed by the doctor (66%). Many also indicated searching for the possible location of care within their area of living as another purpose (59%). The preferences source of seeking information is by consulting with the doctors, followed by talking to family members, friends and consulting with allied health workers. In terms of seeking format of information related to their illness, most respondents preferred printed material (42%) as opposed to electronic (36%) or audiovisual materials (24%). They also mostly preferred information in the Malay language (85%) including of those Chinese respondents. The least preferred source of information is personal health blogs and apps. Respondents preferred a face-to-face meeting with the doctors (55%) as a method of communication. The paper then provides useful suggestions that would facilitate information seeking and use of the information they need among patients and careers in Malaysia and other countries with similar conditions. 2018-05 Article PeerReviewed application/pdf en http://irep.iium.edu.my/64204/1/64204_Information%20Needs%20and%20Seeking%20Behavior.pdf Mohamadali, Noor Azizah and Teoh Cy Oun, Cindy and Ahmad, Maznah and Mohammed, Siti Asma (2018) Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia. Indian Journal of Science and Technology, 11 (20). pp. 1-7. ISSN 0974-6846 E-ISSN 0974-5645 http://www.indjst.org/index.php/indjst/article/view/123588/88220 10.17485/ijst/2018/v11i20/123588
repository_type	Digital Repository
institution_category	Local University
institution	International Islamic University Malaysia
building	IIUM Repository
collection	Online Access
language	English
topic	Q Science (General) RA Public aspects of medicine
spellingShingle	Q Science (General) RA Public aspects of medicine Mohamadali, Noor Azizah Teoh Cy Oun, Cindy Ahmad, Maznah Mohammed, Siti Asma Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
description	Palliative care is associated with life-threatening diseases and death. To deepen understanding of the complexity of information need, information seeking behaviour becomes important in order to enhance the provision of adequate information and quality of services on the part of patients and carers in palliative care. This paper aims to investigate how patients and carer are seeking and use the information they need regarding palliative care. The study mainly assessed careers purpose of seeking information, preferable sources of health information and format, language and method of communication. The study used a quantitative method with the aid of structured questionnaires distributed among 45 respondents. The study found that the main purpose to seek information is to find out details of the illness they were diagnosed by the doctor (66%). Many also indicated searching for the possible location of care within their area of living as another purpose (59%). The preferences source of seeking information is by consulting with the doctors, followed by talking to family members, friends and consulting with allied health workers. In terms of seeking format of information related to their illness, most respondents preferred printed material (42%) as opposed to electronic (36%) or audiovisual materials (24%). They also mostly preferred information in the Malay language (85%) including of those Chinese respondents. The least preferred source of information is personal health blogs and apps. Respondents preferred a face-to-face meeting with the doctors (55%) as a method of communication. The paper then provides useful suggestions that would facilitate information seeking and use of the information they need among patients and careers in Malaysia and other countries with similar conditions.
format	Article
author	Mohamadali, Noor Azizah Teoh Cy Oun, Cindy Ahmad, Maznah Mohammed, Siti Asma
author_facet	Mohamadali, Noor Azizah Teoh Cy Oun, Cindy Ahmad, Maznah Mohammed, Siti Asma
author_sort	Mohamadali, Noor Azizah
title	Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_short	Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_full	Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_fullStr	Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_full_unstemmed	Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia
title_sort	information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital malaysia
publishDate	2018
url	http://irep.iium.edu.my/64204/ http://irep.iium.edu.my/64204/ http://irep.iium.edu.my/64204/ http://irep.iium.edu.my/64204/1/64204_Information%20Needs%20and%20Seeking%20Behavior.pdf
first_indexed	2023-09-18T21:31:04Z
last_indexed	2023-09-18T21:31:04Z
_version_	1777412514134360064

Information needs and seeking behavior of patients and carers in palliative care: a case study from public hospital Malaysia

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