Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besi...
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University of Malaya
2019
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iium-779902020-03-05T08:47:00Z http://irep.iium.edu.my/77990/ Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail L Education (General) Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besides, coping strategies are also put forward as a significant element in understanding the functions of a parent as a caregiver. Hence, this study aims to explore the in-depth experiences of caregivers and investigate the challenges as well as the coping strategies adopted by them, particularly as Muslims. Eight (8) main themes emerged from the findings: (i) chronology; (ii) caregiver roles; (iii) routine changes; (iv) making decisions; (v) financial; (vi) letting go; (vii) external support; and (viii) internal support. This study is unique because the patient was an only child, and he managed to score excellent grades in all subjects in the Malaysian Primary School Achievement Test (UPSR) despite not attending school for almost one year due to cancer treatments. University of Malaya 2019 Article PeerReviewed application/pdf en http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf application/pdf en http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf Ibrahim, Hasniza and Razak, Marini and Aman, Azlina and Sheikh Ahmad, Ismail (2019) Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer. JATI-Journal of Southeast Asian Studies, 24 (2). pp. 67-90. ISSN 1823-4127 E-ISSN 2600-8653 https://jati.um.edu.my/article/view/14859/11036 10.22452/jati.vol24no2.5 |
repository_type |
Digital Repository |
institution_category |
Local University |
institution |
International Islamic University Malaysia |
building |
IIUM Repository |
collection |
Online Access |
language |
English English |
topic |
L Education (General) |
spellingShingle |
L Education (General) Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer |
description |
Parents as caregivers to paediatric cancer patients face various challenges. This
paper highlights the characteristics, caregiving tasks, resources, and other role
demands/stressors experienced by a pair of parents as primary family caregivers
of a child with cancer in the Malaysian setting. Besides, coping strategies are also
put forward as a significant element in understanding the functions of a parent
as a caregiver. Hence, this study aims to explore the in-depth experiences of
caregivers and investigate the challenges as well as the coping strategies adopted
by them, particularly as Muslims. Eight (8) main themes emerged from the
findings: (i) chronology; (ii) caregiver roles; (iii) routine changes; (iv) making
decisions; (v) financial; (vi) letting go; (vii) external support; and (viii) internal
support. This study is unique because the patient was an only child, and he
managed to score excellent grades in all subjects in the Malaysian Primary School
Achievement Test (UPSR) despite not attending school for almost one year due
to cancer treatments. |
format |
Article |
author |
Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail |
author_facet |
Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail |
author_sort |
Ibrahim, Hasniza |
title |
Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer |
title_short |
Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer |
title_full |
Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer |
title_fullStr |
Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer |
title_full_unstemmed |
Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer |
title_sort |
our child is dying: exploring the experiences, challenges and coping mechanisms of malaysian parents as caregivers of a child with cancer |
publisher |
University of Malaya |
publishDate |
2019 |
url |
http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf |
first_indexed |
2023-09-18T21:49:55Z |
last_indexed |
2023-09-18T21:49:55Z |
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1777413700706107392 |