Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer

Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besi...

Full description

Bibliographic Details
Main Authors: Ibrahim, Hasniza, Razak, Marini, Aman, Azlina, Sheikh Ahmad, Ismail
Format: Article
Language:English
English
Published: University of Malaya 2019
Subjects:
Online Access:http://irep.iium.edu.my/77990/
http://irep.iium.edu.my/77990/
http://irep.iium.edu.my/77990/
http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf
http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf
id iium-77990
recordtype eprints
spelling iium-779902020-03-05T08:47:00Z http://irep.iium.edu.my/77990/ Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail L Education (General) Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besides, coping strategies are also put forward as a significant element in understanding the functions of a parent as a caregiver. Hence, this study aims to explore the in-depth experiences of caregivers and investigate the challenges as well as the coping strategies adopted by them, particularly as Muslims. Eight (8) main themes emerged from the findings: (i) chronology; (ii) caregiver roles; (iii) routine changes; (iv) making decisions; (v) financial; (vi) letting go; (vii) external support; and (viii) internal support. This study is unique because the patient was an only child, and he managed to score excellent grades in all subjects in the Malaysian Primary School Achievement Test (UPSR) despite not attending school for almost one year due to cancer treatments. University of Malaya 2019 Article PeerReviewed application/pdf en http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf application/pdf en http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf Ibrahim, Hasniza and Razak, Marini and Aman, Azlina and Sheikh Ahmad, Ismail (2019) Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer. JATI-Journal of Southeast Asian Studies, 24 (2). pp. 67-90. ISSN 1823-4127 E-ISSN 2600-8653 https://jati.um.edu.my/article/view/14859/11036 10.22452/jati.vol24no2.5
repository_type Digital Repository
institution_category Local University
institution International Islamic University Malaysia
building IIUM Repository
collection Online Access
language English
English
topic L Education (General)
spellingShingle L Education (General)
Ibrahim, Hasniza
Razak, Marini
Aman, Azlina
Sheikh Ahmad, Ismail
Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
description Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besides, coping strategies are also put forward as a significant element in understanding the functions of a parent as a caregiver. Hence, this study aims to explore the in-depth experiences of caregivers and investigate the challenges as well as the coping strategies adopted by them, particularly as Muslims. Eight (8) main themes emerged from the findings: (i) chronology; (ii) caregiver roles; (iii) routine changes; (iv) making decisions; (v) financial; (vi) letting go; (vii) external support; and (viii) internal support. This study is unique because the patient was an only child, and he managed to score excellent grades in all subjects in the Malaysian Primary School Achievement Test (UPSR) despite not attending school for almost one year due to cancer treatments.
format Article
author Ibrahim, Hasniza
Razak, Marini
Aman, Azlina
Sheikh Ahmad, Ismail
author_facet Ibrahim, Hasniza
Razak, Marini
Aman, Azlina
Sheikh Ahmad, Ismail
author_sort Ibrahim, Hasniza
title Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_short Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_full Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_fullStr Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_full_unstemmed Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_sort our child is dying: exploring the experiences, challenges and coping mechanisms of malaysian parents as caregivers of a child with cancer
publisher University of Malaya
publishDate 2019
url http://irep.iium.edu.my/77990/
http://irep.iium.edu.my/77990/
http://irep.iium.edu.my/77990/
http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf
http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf
first_indexed 2023-09-18T21:49:55Z
last_indexed 2023-09-18T21:49:55Z
_version_ 1777413700706107392