Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer

Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besi...

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Main Authors:	Ibrahim, Hasniza, Razak, Marini, Aman, Azlina, Sheikh Ahmad, Ismail
Format:	Article
Language:	English English
Published:	University of Malaya 2019
Subjects:	L Education (General)
Online Access:	http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf

id	iium-77990
recordtype	eprints
spelling	iium-779902020-03-05T08:47:00Z http://irep.iium.edu.my/77990/ Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail L Education (General) Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besides, coping strategies are also put forward as a significant element in understanding the functions of a parent as a caregiver. Hence, this study aims to explore the in-depth experiences of caregivers and investigate the challenges as well as the coping strategies adopted by them, particularly as Muslims. Eight (8) main themes emerged from the findings: (i) chronology; (ii) caregiver roles; (iii) routine changes; (iv) making decisions; (v) financial; (vi) letting go; (vii) external support; and (viii) internal support. This study is unique because the patient was an only child, and he managed to score excellent grades in all subjects in the Malaysian Primary School Achievement Test (UPSR) despite not attending school for almost one year due to cancer treatments. University of Malaya 2019 Article PeerReviewed application/pdf en http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf application/pdf en http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf Ibrahim, Hasniza and Razak, Marini and Aman, Azlina and Sheikh Ahmad, Ismail (2019) Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer. JATI-Journal of Southeast Asian Studies, 24 (2). pp. 67-90. ISSN 1823-4127 E-ISSN 2600-8653 https://jati.um.edu.my/article/view/14859/11036 10.22452/jati.vol24no2.5
repository_type	Digital Repository
institution_category	Local University
institution	International Islamic University Malaysia
building	IIUM Repository
collection	Online Access
language	English English
topic	L Education (General)
spellingShingle	L Education (General) Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
description	Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besides, coping strategies are also put forward as a significant element in understanding the functions of a parent as a caregiver. Hence, this study aims to explore the in-depth experiences of caregivers and investigate the challenges as well as the coping strategies adopted by them, particularly as Muslims. Eight (8) main themes emerged from the findings: (i) chronology; (ii) caregiver roles; (iii) routine changes; (iv) making decisions; (v) financial; (vi) letting go; (vii) external support; and (viii) internal support. This study is unique because the patient was an only child, and he managed to score excellent grades in all subjects in the Malaysian Primary School Achievement Test (UPSR) despite not attending school for almost one year due to cancer treatments.
format	Article
author	Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail
author_facet	Ibrahim, Hasniza Razak, Marini Aman, Azlina Sheikh Ahmad, Ismail
author_sort	Ibrahim, Hasniza
title	Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_short	Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_full	Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_fullStr	Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_full_unstemmed	Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
title_sort	our child is dying: exploring the experiences, challenges and coping mechanisms of malaysian parents as caregivers of a child with cancer
publisher	University of Malaya
publishDate	2019
url	http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/ http://irep.iium.edu.my/77990/1/document%20%2857%29.pdf http://irep.iium.edu.my/77990/7/77990_OUR%20CHILD%20IS%20DYING_wos.pdf
first_indexed	2023-09-18T21:49:55Z
last_indexed	2023-09-18T21:49:55Z
_version_	1777413700706107392

Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer

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