Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus

Human Immunodeficiency Virus (HIV) epidemic remains a significant burden in Malaysia. Stigma related to HIV and its effect on the quality of life (QOL) of persons living with HIV (PLHIV) remains under-reported. The aim of the present study was to assess self-perceived stigma amongst PLHIV attending...

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Main Authors: Nadia Abdul Bari, Leelavathi Muthupalaniappen, Narul Aida S, Diana M
Format: Article
Language:English
Published: Pusat Perubatan Universiti Kebangsaan Malaysia 2017
Online Access:http://journalarticle.ukm.my/12683/
http://journalarticle.ukm.my/12683/
http://journalarticle.ukm.my/12683/1/8_nadia_et_al_pdf_14714.pdf
id ukm-12683
recordtype eprints
spelling ukm-126832019-03-17T12:07:54Z http://journalarticle.ukm.my/12683/ Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus Nadia Abdul Bari, Leelavathi Muthupalaniappen, Narul Aida S, Diana M, Human Immunodeficiency Virus (HIV) epidemic remains a significant burden in Malaysia. Stigma related to HIV and its effect on the quality of life (QOL) of persons living with HIV (PLHIV) remains under-reported. The aim of the present study was to assess self-perceived stigma amongst PLHIV attending an urban community clinic and its influence on their QOL. Data was collected using HIV Stigma Scale and WHO-QOL HIV BREF Scale. The overall stigma experienced by PLHIV in this community was higher than previous studies (mean ± SD; 103.37 ±18.14). Majority participants had fear disclosing their disease status, while personalized stigma or the experience of prejudice and rejection was the least experienced. The overall QOL was low and was significantly impaired in social relationship domain (mean ± SD; 12.72 ± 3.59). However, their ability to perform daily activities was not affected by the illness (mean ± SD; 14.48 ± 2.91). PLHIV with higher spiritual values demonstrate lower perception of negative self-image and inferiority (r= -0.54). This finding was unique to PLHIV in this study and suggested the importance of spirituality and personal beliefs on their self-esteem. In conclusion, stigma remains as a significant problem among PLHIV in this community. Primary care offers the best platform to promote a holistic management of PLHIV, where the integration between counselors, religious experts, family and non-governmental associations could come together. The management of PLHIV is unique in every community, hence individualized approach based on cultural norms and beliefs could assist in the overall management of PLHIV. Pusat Perubatan Universiti Kebangsaan Malaysia 2017 Article PeerReviewed application/pdf en http://journalarticle.ukm.my/12683/1/8_nadia_et_al_pdf_14714.pdf Nadia Abdul Bari, and Leelavathi Muthupalaniappen, and Narul Aida S, and Diana M, (2017) Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus. Medicine & Health, 12 (2). pp. 230-243. ISSN 2289-5728 http://www.medicineandhealthukm.com/toc/12/2
repository_type Digital Repository
institution_category Local University
institution Universiti Kebangasaan Malaysia
building UKM Institutional Repository
collection Online Access
language English
description Human Immunodeficiency Virus (HIV) epidemic remains a significant burden in Malaysia. Stigma related to HIV and its effect on the quality of life (QOL) of persons living with HIV (PLHIV) remains under-reported. The aim of the present study was to assess self-perceived stigma amongst PLHIV attending an urban community clinic and its influence on their QOL. Data was collected using HIV Stigma Scale and WHO-QOL HIV BREF Scale. The overall stigma experienced by PLHIV in this community was higher than previous studies (mean ± SD; 103.37 ±18.14). Majority participants had fear disclosing their disease status, while personalized stigma or the experience of prejudice and rejection was the least experienced. The overall QOL was low and was significantly impaired in social relationship domain (mean ± SD; 12.72 ± 3.59). However, their ability to perform daily activities was not affected by the illness (mean ± SD; 14.48 ± 2.91). PLHIV with higher spiritual values demonstrate lower perception of negative self-image and inferiority (r= -0.54). This finding was unique to PLHIV in this study and suggested the importance of spirituality and personal beliefs on their self-esteem. In conclusion, stigma remains as a significant problem among PLHIV in this community. Primary care offers the best platform to promote a holistic management of PLHIV, where the integration between counselors, religious experts, family and non-governmental associations could come together. The management of PLHIV is unique in every community, hence individualized approach based on cultural norms and beliefs could assist in the overall management of PLHIV.
format Article
author Nadia Abdul Bari,
Leelavathi Muthupalaniappen,
Narul Aida S,
Diana M,
spellingShingle Nadia Abdul Bari,
Leelavathi Muthupalaniappen,
Narul Aida S,
Diana M,
Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus
author_facet Nadia Abdul Bari,
Leelavathi Muthupalaniappen,
Narul Aida S,
Diana M,
author_sort Nadia Abdul Bari,
title Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus
title_short Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus
title_full Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus
title_fullStr Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus
title_full_unstemmed Self-perceived stigma and its effect on quality of life among Malaysians living with human immunodeficiency virus
title_sort self-perceived stigma and its effect on quality of life among malaysians living with human immunodeficiency virus
publisher Pusat Perubatan Universiti Kebangsaan Malaysia
publishDate 2017
url http://journalarticle.ukm.my/12683/
http://journalarticle.ukm.my/12683/
http://journalarticle.ukm.my/12683/1/8_nadia_et_al_pdf_14714.pdf
first_indexed 2023-09-18T20:03:09Z
last_indexed 2023-09-18T20:03:09Z
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